This paper is in the following e-collection/theme issue:

Theme Issue: Novel Coronavirus (COVID-19) Outbreak Rapid Reports (1526) JMIR Theme Issue: COVID-19 Special Issue (2481) Infectious Diseases (non-STD/STI) (1641) Outbreak and Pandemic Preparedness and Management (1775) JMH Theme Issue: COVID-19 and Mental Health: Impact and Interventions (401) Cross-Sectional Studies in Public Health (323) Hygiene and Infection Prevention (337)

Published on in Vol 10 (2024)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/48430, first published .
Impact of the COVID-19 Pandemic on People Living With Rare Diseases and Their Families: Results of a National Survey

Impact of the COVID-19 Pandemic on People Living With Rare Diseases and Their Families: Results of a National Survey

Impact of the COVID-19 Pandemic on People Living With Rare Diseases and Their Families: Results of a National Survey

Authors of this article:

Maurizio Macaluso1, 2 Author Orcid Image ;   Marc E Rothenberg2, 3 Author Orcid Image ;   Thomas Ferkol4 Author Orcid Image ;   Pierce Kuhnell1 Author Orcid Image ;   Henry J Kaminski5 Author Orcid Image ;   David W Kimberlin6 Author Orcid Image ;   Michael Benatar7 Author Orcid Image ;   Mirna Chehade8 Author Orcid Image ;   The Principal Investigators of the Rare Diseases Clinical Research Network – Cycle 49
Article Authors Cited by (1) Tweetations (5) Metrics Author Video
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JMIR Public Health: Impact of the #COVID19 #coronavirus Pandemic on People Living With Rare Diseases and Their Families: Results of a National Survey https://t.co/WhqYBWvmAg https://t.co/XMOAjSBKLx

3:12 PM · Feb 14, 2024

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RT @jmirpub: JMIR Public Health: Impact of the #COVID19 #coronavirus Pandemic on People Living With Rare Diseases and Their Families: Resul…

3:13 PM · Feb 14, 2024

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Rare Diseases Clinical Research Network Rare Diseases Clinical Research Network @rarediseasesnet

Read the full publication, "Impact of the COVID-19 Pandemic on People Living With Rare Diseases and Their Families: Results of a National Survey," in @jmirpub: https://t.co/QbtFuBU8Vw

3:27 PM · Aug 19, 2024

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Cincinnati Children’s Research Cincinnati Children’s Research @CincyResearch

Check out Dr. Macaluso @CincyChildrens discussing how #COVID affected children living with #RareDisease. #CovidIsNotOver #Epidemiology @RareDiseases @rarediseasesnet Science blog post: https://t.co/gfAtnlLtZt Study: https://t.co/aGxyvq8kHl Video: https://t.co/DciP1tc51N

6:28 PM · Aug 22, 2024

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Rare Diseases Clinical Research Network Rare Diseases Clinical Research Network @rarediseasesnet

RT @CincyResearch: Check out Dr. Macaluso @CincyChildrens discussing how #COVID affected children living with #RareDisease. #CovidIsNotOver…

7:13 PM · Aug 22, 2024

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