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This paper is in the following e-collection/theme issue:

Theme Issue: Novel Coronavirus (COVID-19) Outbreak Rapid Reports (1547) Cross-Sectional Studies in Public Health (486) Infectious Diseases (non-STD/STI) (1770) Hygiene and Infection Prevention (390) Outbreak and Pandemic Preparedness and Management (1856) JMIR Theme Issue: COVID-19 Special Issue (2571) JMH Theme Issue: COVID-19 and Mental Health: Impact and Interventions 2023 (410)

Published on in Vol 10 (2024)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/48430, first published .
Laptop screen showing a survey for rare disease patients about COVID-19 impacts.

Impact of the COVID-19 Pandemic on People Living With Rare Diseases and Their Families: Results of a National Survey

Impact of the COVID-19 Pandemic on People Living With Rare Diseases and Their Families: Results of a National Survey

Authors of this article:

Maurizio Macaluso1, 2 Author Orcid Image ;   Marc E Rothenberg2, 3 Author Orcid Image ;   Thomas Ferkol4 Author Orcid Image ;   Pierce Kuhnell1 Author Orcid Image ;   Henry J Kaminski5 Author Orcid Image ;   David W Kimberlin6 Author Orcid Image ;   Michael Benatar7 Author Orcid Image ;   Mirna Chehade8 Author Orcid Image ;   The Principal Investigators of the Rare Diseases Clinical Research Network – Cycle 49
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