Published on in Vol 9 (2023)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/50147, first published .
Measurement of Health-Related Quality of Life in Individuals With Rare Diseases in China: Nation-Wide Online Survey

Measurement of Health-Related Quality of Life in Individuals With Rare Diseases in China: Nation-Wide Online Survey

Measurement of Health-Related Quality of Life in Individuals With Rare Diseases in China: Nation-Wide Online Survey

Richard Huan Xu   1 , PhD ;   Shamay S M Ng   1 , Prof Dr ;   Nan Luo   2 , PhD ;   Dong Dong   3, 4 , PhD ;   Shuyang Zhang   5 , Prof Dr

1 Department of Rehabilitation Sciences, The Hong Kong Polytechnic University, Kowloon, China (Hong Kong)

2 Saw Swee Hock School of Public Health, National University of Singapore, Singapore, Singapore

3 JC School of Public Health and Primary Care, The Chinese University of Hong Kong, New Territories, China (Hong Kong)

4 Shenzhen Research Institute, The Chinese University of Hong Kong, Sehnzhen, China

5 Department of Cardiology, Peking Union Medical College and Chinese Academy of Medical Science, Beijing, China

Corresponding Author:

  • Dong Dong, PhD
  • JC School of Public Health and Primary Care
  • The Chinese University of Hong Kong
  • Shatin
  • New Territories
  • China (Hong Kong)
  • Phone: 852 22528488
  • Email: dongdong@cuhk.edu.hk