This paper is in the following e-collection/theme issue:

Theme Issue: Novel Coronavirus (COVID-19) Outbreak Rapid Reports (1481) Ethics, Privacy, and Legal Issues (456) JMIR Theme Issue: COVID-19 Special Issue (2388) Secondary Use of Clinical Data for Research and Surveillance (317) Outbreak and Pandemic Preparedness and Management (1673)

Published on in Vol 6, No 2 (2020): Apr-Jun

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/19279, first published .
COVID-19: Putting the General Data Protection Regulation to the Test

COVID-19: Putting the General Data Protection Regulation to the Test

COVID-19: Putting the General Data Protection Regulation to the Test

Authors of this article:

Stuart McLennan1 Author Orcid Image ;   Leo Anthony Celi2, 3 Author Orcid Image ;   Alena Buyx1 Author Orcid Image
Article Authors Cited by (23) Tweetations (18) Metrics

Journals

  1. Behar J, Liu C, Kotzen K, Tsutsui K, Corino V, Singh J, Pimentel M, Warrick P, Zaunseder S, Andreotti F, Sebag D, Kopanitsa G, McSharry P, Karlen W, Karmakar C, Clifford G. Remote health diagnosis and monitoring in the time of COVID-19. Physiological Measurement 2020;41(10):10TR01 View
  2. Dagliati A, Malovini A, Tibollo V, Bellazzi R. Health informatics and EHR to support clinical research in the COVID-19 pandemic: an overview. Briefings in Bioinformatics 2021;22(2):812 View
  3. Bernardo T, Sobkowich K, Forrest R, Stewart L, D'Agostino M, Perez Gutierrez E, Gillis D. Collaborating in the Time of COVID-19: The Scope and Scale of Innovative Responses to a Global Pandemic. JMIR Public Health and Surveillance 2021;7(2):e25935 View
  4. Pratt B, Bull S. Equitable data sharing in epidemics and pandemics. BMC Medical Ethics 2021;22(1) View
  5. Corte-Real A, Nunes T, Rupino da Cunha P. Blockchain technology in migrant and refugee health: A scoping review. Journal of Global Health 2022;12 View
  6. Majeed A, Hwang S. A Comprehensive Analysis of Privacy Protection Techniques Developed for COVID-19 Pandemic. IEEE Access 2021;9:164159 View
  7. McLennan S, Rachut S, Lange J, Fiske A, Heckmann D, Buyx A. Practices and Attitudes of Bavarian Stakeholders Regarding the Secondary Use of Health Data for Research Purposes During the COVID-19 Pandemic: Qualitative Interview Study. Journal of Medical Internet Research 2022;24(6):e38754 View
  8. Christofidou M, Lea N, Coorevits P. A Literature Review on the GDPR, COVID-19 and the Ethical Considerations of Data Protection During a Time of Crisis. Yearbook of Medical Informatics 2021;30(01):226 View
  9. Ndayishimiye C, Lopes H, Middleton J. A systematic scoping review of digital health technologies during COVID-19: a new normal in primary health care delivery. Health and Technology 2023;13(2):273 View
  10. Fiske A, McLennan S, Buyx A. Ethical insights from the COVID-19 pandemic in Germany: considerations for building resilient healthcare systems in Europe. The Lancet Regional Health - Europe 2021;9:100213 View
  11. Ferretti A, Vayena E. In the shadow of privacy: Overlooked ethical concerns in COVID-19 digital epidemiology. Epidemics 2022;41:100652 View
  12. Grenier C, Loniewski M, Plazy M, Onaisi R, Doucet M, Joseph J, Duvignaud A, Malvy D, Anglaret X, Orne-Gliemann J. Implementing an outpatient clinical trial on COVID-19 treatment in an emergency epidemic context: a mixed methods study among operational and research stakeholders within the Coverage trial, Bordeaux (France). Archives of Public Health 2022;80(1) View
  13. Fiske A, Degelsegger-Márquez A, Marsteurer B, Prainsack B. Value-creation in the health data domain: a typology of what health data help us do. BioSocieties 2023;18(3):473 View
  14. Molenberghs G, Buyse M, Abrams S, Hens N, Beutels P, Faes C, Verbeke G, Van Damme P, Goossens H, Neyens T, Herzog S, Theeten H, Pepermans K, Abad A, Van Keilegom I, Speybroeck N, Legrand C, De Buyser S, Hulstaert F. Infectious diseases epidemiology, quantitative methodology, and clinical research in the midst of the COVID-19 pandemic: Perspective from a European country. Contemporary Clinical Trials 2020;99:106189 View
  15. Casaletto J, Bernier A, McDougall R, Cline M. Federated Analysis for Privacy-Preserving Data Sharing: A Technical and Legal Primer. Annual Review of Genomics and Human Genetics 2023;24(1):347 View
  16. de Kok J, de la Hoz M, de Jong Y, Brokke V, Elbers P, Thoral P, Castillejo A, Trenor T, Castellano J, Bronchalo A, Merz T, Faltys M, Casares C, Jiménez A, Requejo J, Gutiérrez S, Curto D, Rätsch G, Peppink J, Driessen R, Sijbrands E, Kompanje E, Girbes A, Barberan J, Varona J, Villares P, van der Horst I, Xu M, Celi L, van Bussel B, Borrat X. A guide to sharing open healthcare data under the General Data Protection Regulation. Scientific Data 2023;10(1) View
  17. Cervera de la Cruz P, Shabani M. Conceptualizing fairness in the secondary use of health data for research: A scoping review. Accountability in Research 2023:1 View
  18. Maxwell L, Shreedhar P, Dauga D, McQuilton P, Terry R, Denisiuk A, Molnar-Gabor F, Saxena A, Sansone S. FAIR, ethical, and coordinated data sharing for COVID-19 response: a scoping review and cross-sectional survey of COVID-19 data sharing platforms and registries. The Lancet Digital Health 2023;5(10):e712 View
  19. Silva D, Smith M. Data Sharing During Pandemics: Reciprocity, Solidarity, and Limits to Obligations. Journal of Bioethical Inquiry 2023;20(4):667 View
  20. Berete F, Demarest S, Charafeddine R, De Ridder K, Van Oyen H, Van Hoof W, Bruyère O, Van der Heyden J. Linking health survey data with health insurance data: methodology, challenges, opportunities and recommendations for public health research. An experience from the HISlink project in Belgium. Archives of Public Health 2023;81(1) View

Books/Policy Documents

  1. Francis J, Francis L. Sustaining Surveillance: The Importance of Information for Public Health. View
  2. Martani A, Hummel P. Datenreiche Medizin und das Problem der Einwilligung. View