Evaluating the Discriminatory Ability of the Sickle Cell Data Collection Program’s Administrative Claims Case Definition in Identifying Adults With Sickle Cell Disease: Validation Study

Ashima Singh   ¹ , MS, PhD ;   Marci K Sontag   ² , PhD ;   Mei Zhou   ³ , MS ;   Mahua Dasgupta   ¹ , MS ;   Tessa Crume   ⁴ , MSPH, PhD ;   Morgan McLemore   ⁵ , MD ;   Najibah Galadanci   ⁶ , MD ;   Eldrida Randall   ⁵ , MS ;   Nicole Steiner   ¹ , BS ;   Amanda M Brandow   ¹ , DO, MS ;   Kathryn Koch   ⁷ , APNP ;   Joshua J Field   ^{7, 8} , MD ;   Kathryn Hassell   ⁹ , MD ;   Angela B Snyder   ^{3 *} , MPH, PhD ;   Julie Kanter   ^{6 *} , MD

¹ Department of Pediatrics, Medical College of Wisconsin, Milwaukee, WI, United States

² Center for Public Health Innovation, CI International, Littleton, CO, United States

³ Georgia Health Policy Center, Andrew Young School of Policy Studies, Georgia State University, Atlanta, GA, United States

⁴ Department of Epidemiology, Colorado School of Public Health, University of Colorado Anschutz Medical Center, Aurora, CO, United States

⁵ Department of Hematology and Oncology, Winship Cancer Institute, Emory School of Medicine, Atlanta, GA, United States

⁶ Department of Medicine, University of Alabama Birmingham, Birmingham, AL, United States

⁷ Department of Medicine, Medical College of Wisconsin, Milwaukee, WI, United States

⁸ Versiti Blood Center of Wisconsin, Milwaukee, WI, United States

⁹ University of Colorado, Aurora, CO, United States

*these authors contributed equally