This paper is in the following e-collection/theme issue:

General Articles on Innovation and Technology in Public Health (82) Recruitment of Research Participants (340) Electronic/Mobile Data Capture, Internet-based Survey & Research Methodology (908) Public (e)Health, Digital Epidemiology and Public Health Informatics (844) Big Data (276) Ethics, Privacy, and Legal Issues (542)

Published on in Vol 9 (2023)

This is a member publication of University College London (Jisc)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/40814, first published .
Understanding Public Attitudes and Willingness to Share Commercial Data for Health Research: Survey Study in the United Kingdom

Understanding Public Attitudes and Willingness to Share Commercial Data for Health Research: Survey Study in the United Kingdom

Understanding Public Attitudes and Willingness to Share Commercial Data for Health Research: Survey Study in the United Kingdom

Authors of this article:

Yasemin Hirst1, 2, 3 Author Orcid Image ;   Sandro T Stoffel2, 4 Author Orcid Image ;   Hannah R Brewer3 Author Orcid Image ;   Lada Timotijevic5, 6, 7 Author Orcid Image ;   Monique M Raats5, 6, 7 Author Orcid Image ;   James M Flanagan3 Author Orcid Image
Article Authors Cited by (10) Tweetations (12) Metrics

Journals

  1. Brewer H, Chadeau-Hyam M, Johnson E, Sundar S, Flanagan J, Hirst Y. Cancer Loyalty Card Study (CLOCS): feasibility outcomes for an observational case–control study focusing on the patient interval in ovarian cancer. BMJ Open 2023;13(6):e066022 View
  2. Shi J, Yuan R, Yan X, Wang M, Qiu J, Ji X, Yu G. Factors Influencing the Sharing of Personal Health Data Based on the Integrated Theory of Privacy Calculus and Theory of Planned Behaviors Framework: Results of a Cross-Sectional Study of Chinese Patients in the Yangtze River Delta. Journal of Medical Internet Research 2023;25:e46562 View
  3. Khabour O, Mahallawi W, Ali A, Almaramhy H, Bakhsh A, Abu-Siniyeh A, Nandyal R. Attitude towards donation of the excised foreskin after circumcision surgery for research: A study from Madinah, Saudi Arabia. PLOS ONE 2023;18(10):e0293366 View
  4. Shandhi M, Singh K, Janson N, Ashar P, Singh G, Lu B, Hillygus D, Maddocks J, Dunn J. Assessment of ownership of smart devices and the acceptability of digital health data sharing. npj Digital Medicine 2024;7(1) View
  5. Scott S, Thompson M. “Notification! You May Have Cancer.” Could Smartphones and Wearables Help Detect Cancer Early?. JMIR Cancer 2024;10:e52577 View
  6. Kühnel E, Wilke F. Health data sharing in Germany: individual preconditions, trust and motives. Frontiers in Public Health 2025;13 View
  7. Chandrasekaran R, Sadiq T M, Moustakas E. Usage Trends and Data Sharing Practices of Healthcare Wearable Devices Among US Adults: Cross-Sectional Study. Journal of Medical Internet Research 2025;27:e63879 View
  8. Wilke F. The Impact of Trust and the Role of the Opt-Out Mechanism in Willingness to Share Health Data via Electronic Health Records in Germany: Telephone Survey Study. JMIR Human Factors 2025;12:e65718 View

Conference Proceedings

  1. Mandl M, Malin C, Thalmann S. Resilience Through Digital Innovation: Enabling the Twin Transition. It’s a Match! – Finding the Perfect Participants for Health Research. Study on the Willingness to Share Health Data with a Research Referral Portal View
  2. Gómez Ortega A, Bourgeois J, Kortuem G. Designing Interactive Systems Conference. Sensitive Data Donation: A Feminist Reframing of Data Practices for Intimate Research Contexts View