This paper is in the following e-collection/theme issue:

Viewpoint and Opinions on Technology and Innovation in Public Health (67) Ethics, Privacy, and Legal Issues (620) Research Infrastructures and Registries (78) Clinical Informatics (1327)

Published on in Vol 9 (2023)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/34123, first published .
Trusted Data Spaces as a Viable and Sustainable Solution for Networks of Population-Based Patient Registries

Trusted Data Spaces as a Viable and Sustainable Solution for Networks of Population-Based Patient Registries

Trusted Data Spaces as a Viable and Sustainable Solution for Networks of Population-Based Patient Registries

Authors of this article:

Nicholas Nicholson1 Author Orcid Image ;   Sandra Caldeira1 Author Orcid Image ;   Artur Furtado2 Author Orcid Image ;   Ciaran Nicholl1 Author Orcid Image
Article Authors Cited by (3) Tweetations (2) Metrics

Journals

  1. Carinci F, Poljičanin T, Cunningham S, Fava S, Štotl I, Lepiksone J, Nicholson N, Massi Benedetti M, Klazinga N. A taxonomy of indicators for non-communicable diseases: agreement, definition, and contextual description using diabetes as a case study. Frontiers in Public Health 2025;13 View
  2. Carinci F, Nicholson N. Linking registries to deliver standardized NCD indicators in the European Health Data Space: Why do we need a Collaborative Health Information European Framework (CHIEF). Frontiers in Public Health 2025;13 View

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  1. Diaz-de-Arcaya J, Garcia-Perez A, Bonilla L, Miñón R, Torre-Bastida A. 2025 10th International Conference on Smart and Sustainable Technologies (SpliTech). Data Harmonization as a Keystone for Data Spaces: Challenges, Techniques, and Future Trends View