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“I Always Vet Things”: Navigating Privacy and the Presentation of Self on Health Discussion Boards Among Individuals with Long-Term Conditions

“I Always Vet Things”: Navigating Privacy and the Presentation of Self on Health Discussion Boards Among Individuals with Long-Term Conditions

Rachel has ME/CFS and regularly posts in a forum used by other people with similar symptoms. She is concerned that the forum can be viewed by anyone, not just the people who contribute to it.

Ellen Brady, Julia Segar, Caroline Sanders

J Med Internet Res 2016;18(10):e274


User Involvement in Developing the MYPLAN Mobile Phone Safety Plan App for People in Suicidal Crisis: Case Study

User Involvement in Developing the MYPLAN Mobile Phone Safety Plan App for People in Suicidal Crisis: Case Study

Jenny: That would send Rachel [her daughter] round the bends; you would be stalking her, right? I think it is good, you could use it in crisis situations or that they can use it in crisis situations.

Niels Buus, Anette Juel, Hila Haskelberg, Hanne Frandsen, Jette Louise Skovgaard Larsen, Jo River, Kate Andreasson, Merete Nordentoft, Tracey Davenport, Annette Erlangsen

JMIR Ment Health 2019;6(4):e11965


Gamified Cognitive Control Training for Remitted Depressed Individuals: User Requirements Analysis

Gamified Cognitive Control Training for Remitted Depressed Individuals: User Requirements Analysis

Karl (K), Jeff (J), Chris (C), Will (W), and Rachel (R) were participants. M, N, X1, and X2 were moderator, note taker, researcher from the randomized controlled trial (RCT) study, and an employee of a game developer company, respectively.

Jasmien Vervaeke, Jan Van Looy, Kristof Hoorelbeke, Chris Baeken, Ernst HW Koster

JMIR Serious Games 2018;6(2):e6


Small Data and Its Visualization for Diabetes Self-Management: Qualitative Study

Small Data and Its Visualization for Diabetes Self-Management: Qualitative Study

Rachel makes notes on her app “if I do have any unusual results.” With an existing diagnosis of type 2 diabetes, she noted that her BGLs were increasing in spite of her vigilant lifestyle and monitoring.

Sally Jane Burford, Sora Park, Paresh Dawda

JMIR Diabetes 2019;4(3):e10324


Social Uses of Personal Health Information Within PatientsLikeMe, an Online Patient Community: What Can Happen When Patients Have Access to One Another’s Data

Social Uses of Personal Health Information Within PatientsLikeMe, an Online Patient Community: What Can Happen When Patients Have Access to One Another’s Data

In the following case, another user expressed her pleasure in finding others with a shared but atypical disease progression: hi [Rachel]. yes same boat indeed. i am so glad to find this site because i see there are many of us with slower progression than stereotypical

Jeana Frost, Michael Massagli

J Med Internet Res 2008;10(3):e15