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“I Always Vet Things”: Navigating Privacy and the Presentation of Self on Health Discussion Boards Among Individuals with Long-Term Conditions

Rachel has ME/CFS and regularly posts in a forum used by other people with similar symptoms. She is concerned that the forum can be viewed by anyone, not just the people who contribute to it.

Ellen Brady, Julia Segar, Caroline Sanders

J Med Internet Res 2016;18(10):e274

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User Involvement in Developing the MYPLAN Mobile Phone Safety Plan App for People in Suicidal Crisis: Case Study

Jenny: That would send Rachel [her daughter] round the bends; you would be stalking her, right? I think it is good, you could use it in crisis situations or that they can use it in crisis situations.

Niels Buus, Anette Juel, Hila Haskelberg, Hanne Frandsen, Jette Louise Skovgaard Larsen, Jo River, Kate Andreasson, Merete Nordentoft, Tracey Davenport, Annette Erlangsen

JMIR Ment Health 2019;6(4):e11965

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Gamified Cognitive Control Training for Remitted Depressed Individuals: User Requirements Analysis

Karl (K), Jeff (J), Chris (C), Will (W), and Rachel (R) were participants. M, N, X1, and X2 were moderator, note taker, researcher from the randomized controlled trial (RCT) study, and an employee of a game developer company, respectively.

Jasmien Vervaeke, Jan Van Looy, Kristof Hoorelbeke, Chris Baeken, Ernst HW Koster

JMIR Serious Games 2018;6(2):e6

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Conurbation, Urban, and Rural Living as Determinants of Allergies and Infectious Diseases: Royal College of General Practitioners Research and Surveillance Centre Annual Report 2016-2017

Simon de Lusignan, Christopher McGee, Rebecca Webb, Mark Joy, Rachel Byford, Ivelina Yonova, Mariya Hriskova, Filipa Matos Ferreira, Alex J Elliot, Gillian Smith, Imran Rafi

JMIR Public Health Surveill 2018;4(4):e11354

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Enhanced Safety Surveillance of Influenza Vaccines in General Practice, Winter 2015-16: Feasibility Study

Simon de Lusignan, Ana Correa, Gaël Dos Santos, Nadia Meyer, François Haguinet, Rebecca Webb, Christopher McGee, Rachel Byford, Ivelina Yonova, Sameera Pathirannehelage, Filipa Matos Ferreira, Simon Jones

JMIR Public Health Surveill 2019;5(4):e12016

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Nutritional Strategies Facing an Older Demographic: The Nutrition UP 65 Study Protocol

Teresa F Amaral, Alejandro Santos, Rita S Guerra, Ana S Sousa, Luísa Álvares, Rui Valdiviesso, Cláudia Afonso, Patrícia Padrão, Cátia Martins, Graça Ferro, Pedro Moreira, Nuno Borges

JMIR Res Protoc 2016;5(3):e184

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Incidence of Lower Respiratory Tract Infections and Atopic Conditions in Boys and Young Male Adults: Royal College of General Practitioners Research and Surveillance Centre Annual Report 2015-2016

Simon de Lusignan, Ana Correa, Richard Pebody, Ivelina Yonova, Gillian Smith, Rachel Byford, Sameera Rankiri Pathirannehelage, Christopher McGee, Alex J. Elliot, Mariya Hriskova, Filipa IM Ferreira, Imran Rafi, Simon Jones

JMIR Public Health Surveill 2018;4(2):e49

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Human Factors and Data Logging Processes With the Use of Advanced Technology for Adults With Type 1 Diabetes: Systematic Integrative Review

Marion Waite, Clare Martin, Rachel Franklin, David Duce, Rachel Harrison

JMIR Hum Factors 2018;5(1):e11

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Small Data and Its Visualization for Diabetes Self-Management: Qualitative Study

Rachel makes notes on her app “if I do have any unusual results.” With an existing diagnosis of type 2 diabetes, she noted that her BGLs were increasing in spite of her vigilant lifestyle and monitoring.

Sally Jane Burford, Sora Park, Paresh Dawda

JMIR Diabetes 2019;4(3):e10324

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Social Uses of Personal Health Information Within PatientsLikeMe, an Online Patient Community: What Can Happen When Patients Have Access to One Another’s Data

In the following case, another user expressed her pleasure in finding others with a shared but atypical disease progression: hi [Rachel]. yes same boat indeed. i am so glad to find this site because i see there are many of us with slower progression than stereotypical

Jeana Frost, Michael Massagli

J Med Internet Res 2008;10(3):e15

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